When I began working at this new hospice 8 months ago, I kind of got into a funk. Without any patients yet, I was spending most of my time performing church services, doing bedside communion, and developing grief group presentations. It's not that I dislike these parts of my job, but I really thrive from one-to-one spiritual care. Ritual is important to me because of the potential to provide people with a powerful moment. I'm not really into writing and developing and planning it all out... but I also am finicky about what is said or done. So now I have a routine,a format for the services, and can now focus on providing meaningful moments for the residents.
This afternoon I went to a memory care assisted living place and went room to room. I ended up not giving a single person communion, but I had a lot of conversations, held hands, rubbed backs, said several Our Fathers, and prayed for about a dozen people and their families. During that time, I made people smile, I eased their hearts a bit. There was one woman, whom I visited several times before, who is no longer able to say the right words for what she needs or wants, but smiles all the time. I wanted to try to spark recognition in her mind and heart. After I said the Lord's Prayer for her, she showed no response. So then I decided to try singing. I sang a few verses of Amazing Grace. For the first time I saw her eyes get sad and teary while she looked as if she were remembering bittersweet memories. I can't tell you what a gift it was to reach her in that way.
This isn't the first time I've seen this response to that song. (No, it isn't from my singing, I have a fairly pleasant voice, I promise) Others with dementia have responded to Amazing Grace with tears and even sobbing. There is something sacred in tears. Instead of feeling like I was causing her pain, I felt like she was able to set free emotions that were hard for her to express anymore. When a person with dementia goes through a phase where she is paranoid, angry or violent, it disturbs us. It is painful to watch someone you love or who was so sweet turn into a stranger. And you can feel like the person is trapped in hell. But when it is all smiles and/or flat affect, I think we forget the person is still trapped in her own way. Those tears and sad, far-away eyes meant something to her. That song meant something to her.
So, for all the smiles I helped bring about today, it is the tears that I am most thankful for.
Thursday, September 15, 2011
Sunday, September 11, 2011
The ratty familiar blanket of grief
Grief is like an old blanket surrounding me. Its comfort isn't from softness, but from familiarity. Actually, it kind of chafes and often suffocates, but its an old friend by now. No matter what, it never leaves me. A constant in an ever-changing world. Through the weave of my blanket, I see the world distorted. When I should see the happiness in others, all I can see is what is not mine. I distantly recall others talking about how selfish grief made them feel, but I didn't truly understand. Now with every pregnant belly and smiling pictures of young families I see, I feel bitter, bitter feelings. Envy. Rage. Jealousy. Vicious and Cruel, it beats up my heart and soul.
No matter how hard my life was, I never wanted to be someone else. I never regretted my past. When I was flat on my back, looking up from where I fell, I would wipe the tears, smile, and get back up, looking forward to a better time. But in this dark place, I have begged and pleaded within my heart, that somehow, someway, I could be delivered, replaced, released from where I am now. There have been moments of despair so strong, I see what makes one bargain with the devil. My heart is not allowed to make decisions for me these days. I cannot trust my usually sharp intuition about people, places, and emotions.
It is not in every moment that I feel like this. In fact, I have some very amazing, sun-drenched, soul-healing days. And moments that I see so clearly, even through the fabric of grief, that I can feel the acceptance and love of the universe deep within my bones. But the dark times are more terrfying than they ever were. They well up from within, like a geyser of black oil.
I'm not sure where to go, now that I've found this violently cruel place in myself. How does a mystic, a seeker of truth and beauty, turn so dark inside? Where is redemption, where is solace, where is forgiveness? I am not short-sighted or blind. I know my suffering is almost trite and so utterly common. There is limitless amounts of suffering in this world. But, it is now my turn to struggle with the experience. The grievances in my past, though some are terrible, seem so petty now.
The truth, ah yes, if I'm honest with myself, is in my anger. How can I feel connected to a universe I feel so betrayed by? Because I CANNOT accept that my infertility, my broken body, isn't someone's fault. Either it must be mine, or it must be the universe's. This is not some fluke, some accident of converging factors. This is my life. This is my future. There is NO freaking mystery here. It's not sacred or divine. It is pain and suffering. Out of the trillion and one threads of the future that lie before me in this moment, none of them are really in my control. The LURE that is supposed to encourage me to make positive choices is not present in this moment, because the choice is taken away from me. And, yet, the universe is not something I can just ignore. It is all around me. I am made of it, body and soul. So I rant and rave at it, like a petulant teenager who wants to be free, but can't leave home.
Let me tell you the irrational and crazy thoughts that wrap around my strangled heart. One, I'm unworthy. Somehow the universe sensed this darkness in me, even when I didn't. Two, I really am meant to be a vessel, a tool, for the universe to use. Therefore, I am allowed only so much happiness to distract me. Or perhaps, to be a better tool, I needed to be worn down with a bit of my own suffering. Three, from what the doctors told me, I really did have a choice when I was younger. I could have easily gotten pregnant at 20. I made my choice, now I have to live with it. And of course, this leads to thinking of infertility as a punishment for wrong choices, doesn't it? Four, I am a burden to my husband, I am broken and barren. What kind of partner makes him suffer for my problems? Five, I was made for this... to be a hospice chaplain, a preparer for the journey of death. Life and creation don't belong with someone like me. That is for other people. Six... well, the list is endless and ever changing.
I found myself thinking thoughts that would give up all my ethics and ideals just to be given the chance of conceiving. And with those thoughts, my anger, hurt, and despair now mingles with guilt and shame. I do not believe we are meant to be selfish creatures. We are meant for more than that.
The balm to my soul? The place I've found that allows me to keep moving forward? It's not a pretty happy place with rainbows and flowers. It's the rough, burlap blanket of grief that comforts me. An acceptance that pain and suffering is just part of me now. It's not bravery or courage, not really. Just the hard reality that this is who I am now. If by some fluke I became pregnant tomorrow and had a life with several of my own birth children, this pain would not disappear. It would still be a part of me. I may find a future that has more happiness than there is in this moment. I may adopt and surround myself with people to give my love to, but this blanket will never leave.
Where is my hope now? It is that this blanket may someday be a mantel, a cloak I wear with pride and love, as a place that I have been, a place I visit occasionally, but never have to linger as long as I am now.
No matter how hard my life was, I never wanted to be someone else. I never regretted my past. When I was flat on my back, looking up from where I fell, I would wipe the tears, smile, and get back up, looking forward to a better time. But in this dark place, I have begged and pleaded within my heart, that somehow, someway, I could be delivered, replaced, released from where I am now. There have been moments of despair so strong, I see what makes one bargain with the devil. My heart is not allowed to make decisions for me these days. I cannot trust my usually sharp intuition about people, places, and emotions.
It is not in every moment that I feel like this. In fact, I have some very amazing, sun-drenched, soul-healing days. And moments that I see so clearly, even through the fabric of grief, that I can feel the acceptance and love of the universe deep within my bones. But the dark times are more terrfying than they ever were. They well up from within, like a geyser of black oil.
I'm not sure where to go, now that I've found this violently cruel place in myself. How does a mystic, a seeker of truth and beauty, turn so dark inside? Where is redemption, where is solace, where is forgiveness? I am not short-sighted or blind. I know my suffering is almost trite and so utterly common. There is limitless amounts of suffering in this world. But, it is now my turn to struggle with the experience. The grievances in my past, though some are terrible, seem so petty now.
The truth, ah yes, if I'm honest with myself, is in my anger. How can I feel connected to a universe I feel so betrayed by? Because I CANNOT accept that my infertility, my broken body, isn't someone's fault. Either it must be mine, or it must be the universe's. This is not some fluke, some accident of converging factors. This is my life. This is my future. There is NO freaking mystery here. It's not sacred or divine. It is pain and suffering. Out of the trillion and one threads of the future that lie before me in this moment, none of them are really in my control. The LURE that is supposed to encourage me to make positive choices is not present in this moment, because the choice is taken away from me. And, yet, the universe is not something I can just ignore. It is all around me. I am made of it, body and soul. So I rant and rave at it, like a petulant teenager who wants to be free, but can't leave home.
Let me tell you the irrational and crazy thoughts that wrap around my strangled heart. One, I'm unworthy. Somehow the universe sensed this darkness in me, even when I didn't. Two, I really am meant to be a vessel, a tool, for the universe to use. Therefore, I am allowed only so much happiness to distract me. Or perhaps, to be a better tool, I needed to be worn down with a bit of my own suffering. Three, from what the doctors told me, I really did have a choice when I was younger. I could have easily gotten pregnant at 20. I made my choice, now I have to live with it. And of course, this leads to thinking of infertility as a punishment for wrong choices, doesn't it? Four, I am a burden to my husband, I am broken and barren. What kind of partner makes him suffer for my problems? Five, I was made for this... to be a hospice chaplain, a preparer for the journey of death. Life and creation don't belong with someone like me. That is for other people. Six... well, the list is endless and ever changing.
I found myself thinking thoughts that would give up all my ethics and ideals just to be given the chance of conceiving. And with those thoughts, my anger, hurt, and despair now mingles with guilt and shame. I do not believe we are meant to be selfish creatures. We are meant for more than that.
The balm to my soul? The place I've found that allows me to keep moving forward? It's not a pretty happy place with rainbows and flowers. It's the rough, burlap blanket of grief that comforts me. An acceptance that pain and suffering is just part of me now. It's not bravery or courage, not really. Just the hard reality that this is who I am now. If by some fluke I became pregnant tomorrow and had a life with several of my own birth children, this pain would not disappear. It would still be a part of me. I may find a future that has more happiness than there is in this moment. I may adopt and surround myself with people to give my love to, but this blanket will never leave.
Where is my hope now? It is that this blanket may someday be a mantel, a cloak I wear with pride and love, as a place that I have been, a place I visit occasionally, but never have to linger as long as I am now.